It is an honour for me to serve as the President of the EPNS for a further term (2014-2018) and it is with delight that I see the EPNS drive forward from strength to strength in attaining its aims. Our dynamic members of the EPNS Board are dedicated to developing paediatric neurology, to give training and education to our younger colleagues at the highest level and to start new scientific and vibrant collaborations throughout Europe and beyond. I invite you to explore our website to learn more about our exciting events and initiatives, and there is more to come! I would especially draw your attention to our EPNS Research Meeting in Romania, and please select the ‘Education and Training’ tab above to learn more about our training course in Georgia, the training courses taking place in Hungary during 2015-2017, and our EPNS Fellowship scheme. Not forgetting our 11th EPNS Congress from 27-30 May 2015 in Austria – I urge you to put this date in your diary! For more details about our Congress, you can visit http://www.epns2015.org/ Of course if you are not already a member of the EPNS and you are a physician with a research or clinical interest in Paediatric Neurology, we would be delighted to welcome you to our Society. It’s easy to join – just select the ‘Membership’ tab above and complete our on-line application form. Any queries whatsoever, please do not hesitate to email firstname.lastname@example.org I wish you all a safe and happy summer. Best regards Professor Lieven Lagae EPNS President
Affiliation: Professor of Paediatrics, Chair of Paediatrics University of Zagreb Medical School, Head of Division for Child Neurology, Clinical Medical Centre Zagreb, Croatia, Leader of Referral Centre for paediatric neuromuscular disorders Ministery of health, Republic of Croatia Training: Graduated Zagreb Medical School, postgraduate studies: Clinical pharmacology, Clinical Paediatrics, Trainings:Neurophysiology (EEG and EMG), Bristish Council fellowship, Hammersmith, London, Neuromuscular unit; American Child Neurology Society Fellowship Award at Johns Hopkins and Children’s Hospital Washington, Fellowship American Austrian foundation, neurometabolic disorders, Salzburg Vienna, Fellowship Friedrich Baur and Ludwigs-Maximillians-Universitat, Genezentrum LMU in Munchen Fields of interest: Neuromuscular disorders, epilepsy and disorders of migration and cortical organization, EEG/EMG, Neurometabolic disorders, Neuropharmacology, Neuroimmunology Memberships: Editorial Board of Paediatria Croatica and Neurologia Croatica, President elected of the Croatian Child Neurology Society; American Paedatric Neurology Society, Committee of National Advisers EPNS, Local(host)President of 2011 9th EPNS Congress in Cavtat/Dubrovnik, Croatia.
Affiliation: Professor, Hacettepe University Faculty of Medicine, Department of Pediatric Neurology, Ankara, Turkey (1989- ). Training: medical education, M.Sci degree, training in paediatrics and pediatric neurology at Hacettepe University; research training at the University of Chicago and University of Michigan (USA). Fields of clinical and research interest: immune-mediated neurological diseases, developmental disorders, and neurofibromatosis type 1. Memberships: Turkish Child Neurology Society, American Academy of Neurology (corresponding member),Asian-Oceanian Child Neurology Association (AOCNA).European Pediatric Neurology Society (EPNS) (board member 2006- ), International Child Neurology Association (ICNA) (board member 2006- )
CHAIR OF THE FINANCE COMMITTEE
Affiliation: Paediatric Neurologist, Sheffield Childrens NHS Foundation Trust, Sheffield, UK. Medical education: Cambridge University (preclinical); University College Hospital London (clinical). Training: Paediatric Neurology: Newcastle, with Dr David Gardner-Medwin and Professor Janet Eyre (Senior Registrar); Sheffield, with Dr Gwylim Hosking (Lecturer); and Edinburgh, with Dr Keith Brown and Dr Bob Minns (Registrar). Paediatric training also includes a year as Medecin Resident Etranger, Hospices Civils de Lyon, France, with Professor F Larbre and Professor P Guibaud, and posts in London. Fields of Interest: Pyridoxine dependent seizures; epilepsy; neuromuscular disorders; ataxia Memberships: Ataxia UK: Medical Advisor.Royal College of Physicians of Edinburgh / Royal College of Paediatrics and Child Health: Examiner in Paediatrics. British Paediatric Neurology Association: President 2010-11. European Paediatric Neurology Society: Board Member 2001-13; chair of finance committee from 2001; Secretary 2009-13. International Child Neurology Association: Board Member 2002-10. Developmental Medicine and Child Neurology:Editorial Board 2001, Editor-in-Chief from Jan 2004.
Affiliation: Head of the Gottfried von Preyer Children’s Hospital, Department of Paediatrics and Adolescent Medicine, Austria
Training: Sept. 2003 “Habilitation” (Venia docendi – post-doctoral lecturing qualification) Medical University of Vienna, 1992 – 1995 Training in Neuropaediatrics and Child and Adolescent Neuropsychiatry, 1991 Research Fellow, Division of Paediatric Neurology (Prof. P. Casaer), Leuven, Belgium, June1989 Completion of training in Paediatrics and Adolescent Medicine, 1983-1989 Registrar: Paediatrics, Vienna
Career history: 2003 – Head of the Department of Paediatrics, G. v. Preyer Children’s Hospital, Vienna, Austria, 1995 – 2003 Division of Paediatric Neurology (Supervisor), University Hospital Vienna
Memberships: Austrian Paediatric Society (ÖGKJ), German-Austrian Neonatology and Paediatric Intensive Care Society (GNPI), German-Austrian-Swiss Neuropaediatric Society (GFN), European Paediatric Neurology Society (EPNS), European Academy of Childhood Disability (EACD)
Clinical and Research Interest: Neuromuscular Diseases, Neonatal Neurology, Treatment of spastic disorders including CP with Botulinum, Toxin. Publications: 45 peer-reviewed publications in scientific journals
Affiliation: Professor of Paediatrics. Miguel Hernández University. Elche (Alicante). Since 1998-Professional: Neuropaediatric Unit responsible. University Hospital of San Juan de Alicante. 1999-.
Medical Degree Studies: 1975-82. Valencia and Alicante University Medical Faculties. Medical Licentiate Degree dissertation:“Febrile convulsions in infancy”. 10 of July, 1985. Alicante University.Medical Doctor Degree thesis: “Perinatal hypoxia influence in the development of febrile convulsions”. 29 June, 1989. Extraordinary Award. 1 October, 1990. Alicante University. Master in Paediatrics and Infant Health. 1987-1991. Including Neuropaediatric training. Alicante University.Research Fellow in Neonatal Neurology. Leeds General Infirmary. March 1992- March 1993, Clinical Epidemiology Diploma: EVEST. Valencian Government. 1993-1994.Valencia. Paediatric General Training. Neuropaediatric Training. 1995-1999. University Hospital. San Juan de Alicante.Complementary rotation in Paediatric Neurology. Sant Joan de Deu University Hospital. Barcelona, 1998.Academic: Lecturer on Paediatrics. Alicante University. 1988-1998.
Societies: Council Member of the Spanish Paediatric Neurology Society (SENEP). Period 2006-2008. President of the SENEP. Period 2008-2010. CNA Spanish representative since 2008-until the present. Council member of the CNA since 2011-. EPNS membership 2011- now. Ex-president council member of the SENEP. Period 2011-13.
President of the XI Mediterranean Meeting of Child Neurology. 2006 Alicante.
President of the Spanish XXXII Annual SENEP meeting. 2007 Alicante.
Council member of the organizing committees of: ESPR Annual meeting 1995; Spanish Paediatric Association (AEP) 1995; Union of Middle Eastern and Mediterranean Paediatric Societies 2002, all of them held in Alicante.
Research interest: Neonatal neurology; neurodevelopmental genetics and epidemiology.
CHAIR OF THE EDUCATION AND TRAINING COMMITTEE
Affiliation: Paediatric neurologist, Head of department of Paediatric Neurology, Erasmus University- Sophia Children’s Hospital, Rotterdam
Training: Pre- and postgraduate medical training, training as a (paediatric) neurologist at the Erasmus University Hospital, Rotterdam
Fields of clinical and research interest: Neuro-oncology, stroke, immune mediated demyelinating disease / multiple sclerosis, neurocognitive outcome of children with acquired brain injury, cerebellar cognition
Memberships: Chair of the Dutch Society of Paediatric Neurology (2006-2010). Dutch representative in the board of National Advisors of EPNS; International Child Neurology Association; International Society of Pediatric Neuro-Oncology, SIOP; World Federation of Neurology – Research Group on Aphasia and Cognitive Disorders, International Pediatric Multiple Sclerosis Study Group, International Pediatric Stroke Study Group.
Dana Cristina Craiu
Affiliation: Associate Professor of Pediatric Neurology, “Carol Davila” University of Medicine, Bucharest; Head of Pediatric Neurology Clinic, “Al. Obregia” Hospital, Bucharest, Romania.
Training: “Carol Davila” University of Medicine, Bucharest; Paediatric Neurology training in Bucharest; subspecialisation in Neurophysiology – achieved in Bucharest and Heemstede, The Netherlands and subspecialisation in Epilepsy in Bucharest and multiple International Courses. Ph.D. thesis on “Frontal epilepsies” (2004).
Fields of clinical and research interest: Main interest: epilepsy and EEG: Epilepsy Genetics (European consortium EuroEPINOMICS), cognition in epilepsy, behaviour and ASD in epilepsy, quality of life in epilepsy, etc. Othe areas: neuro-muscular disorders (“Biomarkers in Duchenne Muscle Dystrophy”), tuberous sclerosis (TOSCA study), multiple sclerosis (“Cognitive-behavioral changes in Childhood” and imaging studies) and Ataxia Working Group.
Memberships: Romanian Pediatric Neurology Society; ILAE Romania; ICNA; Romanian Group for Epilepsy Surgery; member of CEA ILAE.
Linda Joanna de Meirleir
CHAIR OF THE SCIENTIFIC AND RESEARCH COMMITTEE
Affiliation: Chief of Paediatric Neurology at the Free University of Brussels and Chief of Metabolic Diseases at the University of Gent, Belgium
Training: Brussels and Hospital for Sick Children in Toronto, Canada; specialisation in Neuropsychiatry, Brussels; specialisation in Paediatric Neurology
Fields of clinical and research interest: Inborn errors of metabolism resulting in congenital lactic acidosis syndromes including the clinical, biochemical and molecular investigation of mitochondrial respiratory chain defects and pyruvate dehydrogenase deficiency
Memberships: Belgian Paediatric Neurology Union; EPNS; ICNA; SSIEM
Affiliation: Paediatric neurologist and senior lecturer at Newcastle University, UK
Training: Cambridge, Oxford, Nottingham and Newcastle, UK and Vancouver, Canada
Fields of clinical and research interest: I am a general paediatric neurologist in a busy regional centre. My special interests include acute neurology and coma, neuroprotection, the epidemiology of and outcome prediction after paediatric acquired brain injury and plasticity after acquired brain injury and neurorehabilitation. I lead the regional paediatric acquired brain injury rehabilitation and intrathecal baclofen services. I was UK National Training Adviser in paediatric neurology from 2003-2009 and Secretary of the European Committee of National [paediatric neurology training) Advisers until 2009
Memberships: British Paediatric Neurology Association, World Federation of Neurorehabilitation, European Paediatric Neurology Society
Affiliation: Professeur des Universités, Praticien Hospitalier: Department of Pediatric Neurology, Hôpital Necker Enfants Malades(APHP), 149 rue de Sèvres .75015 Paris (France), Function : Head of the department of Pediatric Neurology in Necker.
Memberships: President of the French Neuropediatric Society (SFNP), Member of the French Myology Society (SFM), of the French Pediatric Society (SFP), of the SFEIM (Société Française des Erreurs Innées du Métabolisme), Member of the board of the French Network of Reference Centers for Neuromuscular Disorders (CORNEMUS), Member of the WMS (World Muscle Society)
Fields of clinical and research interest: Neuromuscular Disorders, Neurométabolic disorders, Mitochondrial Disorders, Member of INSERM Units: U681 (Genetic disorders, Pr A Munnich) and U1012 (Physiopathology of the muscle (B Chazaud)
Affiliation: Professor and Head, Department of Child Neurology and Developmental Medicine, Dr. von Hauner Children’s Hospital, University of Munich, Germany.
Training and positions: Since 2003 Head Department of Child Neurology and Developmental Medicine, University of Munich, 1999-2003 Director Children’s Hospital Duisburg (Academic Hospital of the University Duisburg-Essen), 1999 Assistant Professor Paediatrics and Child Neurology at the Albert-Ludwigs-University, Freiburg i Br., Germany, 1987-1997 Post-graduate studies and Medical Doctor at the University of Freiburg in the fields of Neurology, Psychiatry, Paediatrics and Child Neurology, 1969-1979 Graduate Studies of Human Medicine at the Albert-Ludwigs-University, Freiburg, Schooling/High School Diploma, Bonn
Fields of clinical and research interests: Introduction of Botulinum Toxin therapy for children in Germany, Introduction of sonography-guided injections of Botulinum Toxins in children, Research in motor development by neurophysiological and systemphysiological methods and imaging techniques, Clinical studies and trials, Evidence-based approach to Epilepsy, Movement disorders (cerebral palsy and dystonia), Headache, Fetal Alcohol Syndrome (FAS)
Past-President of the Society for Neuropediatrics (GNP)
Initiator and responsible Coordinator of the Academy for Continuing Education of the GNP
Society for Clinical Neurophysiology and Functional Imaging
Research Committee of the American Academy on Cerebral Palsy and Developmental Medicine (AACPDM), USA
Member Working Party Botulinum Toxin of the German Society for Neurology
Scientific advisory board member of the German Dystonia Society (DDG)
Board member European Paediatric Neurology Society (EPNS)
CO-OPTED BOARD MEMBER
Affiliation: Professor at the Faculty of Medicine of the University of Pécs/Hungary, Deputy Clinical Director of Pécs University Children’s Hospital, Head of the Department of Paediatric Neurology, in charge of undergraduate and postgraduate education of Paediatrics and Paediatric Neurology
Training: Undergraduate at the University of Pécs/Hungary; Postgraduate: paediatrics, paediatric neurology and clinical neurophysiology in Pécs/Budapest, PhD 1999
Fields of clinical and research interest: Cerebral Palsy, epilepsy, EEG, mental retardation, Rett syndrome
Memberships: President of the Hungarian Paediatric Neurology Society, Board member of the Hungarian Paediatric Association, Hungarian League Against Epilepsy, International Child Neurology Association (ICNA), European Paediatric Neurology Society (EPNS), Hungarian Paediatric Neurologist Training Committee; Editorial board of Gyermekgyógyászat (Paediatrics)
I have experiences in the education of medical students (both lectures and bedside teaching). As tutor and mentor I am responsible for the Paediatric Neurology Training of the postgraduate students.
Motivation: As an academic medical doctor, I have been participating in the education and training of medical students and residents with great interest for more than 20 years. It is a great honour for the Hungarian Paediatric Neurology Society to host the EPNS Training Courses between 2015-17 in Budapest/Hungary.
Affiliation: Consultant Paediatric Neurologist, Guy’s & St Thomas’ NHS Foundation Trust 1997-
Training: PhD qualified in medicine in 1983 from Edinburgh University. After training in adult medicine & neurology and paediatrics, obtained an Edinburgh University George Guthrie Research Fellowship 1990-4 leading to a PhD in ‘Motor Assessments in Cerebral Palsy’ supervised by E Geoffrey Walsh and J Keith Brown. Posts include Senior Registrar in Paediatric Neurology, Great Ormond Street Hospital for Children, Gait Laboratory Fellow 1996,
Services Developed 1997-2013 1. Director Clinical One Small Step Gait and Movement Laboratory 1997-99, 2. The Movement Therapy Clinics 1997-2008, 3. The Complex Motor Disorders Service (CMDS) 2006-present pump primed by a New Services and Innovation Grant Project Number G060708 from Guy’s and St Thomas’ Charity from April 2007-9 delivering Deep Brain Stimulation for children with dystonia and intrathecal baclofen pump implants for children with spasticity alone or mixed spasticity-dystonia.
Research interests: Raised intracranial pressure, neuroinflammation, movement disorders and the impact of deep brain stimulation, National/international responsibilities: PhD Supervisor, Chair: British Paediatric Neurology Association Movement Disorders Special Interest Group Jan 2010-, Medical Advisorships: The Dystonia Society UK and Dystonia Europe, Member: The Physiology Society, Former Editorial Board Member: Developmental Medicine and Child Neurology
CO-OPTED BOARD MEMBER
Affiliation: Paediatric Neurologist, Neurology Department, Kiev Municipal Paediatric Hospital â„–1
Training: National Medical University, Kiev (Paediatrics); Kiev Medical Academy of Post-Graduate Training (Paediatric Neurology), Observing doctor at Fraser of Allander Neurosciences Unit, Glasgow (2 mth in 2002); European Epilepsy Academy Distance learning course on Genetics of Epilepsy (2004 – 2005), EPNS training course on neuromuscular disorders, CEA Educational Course on epilepsy
Fields of clinical and research interest: epilepsy; non-epileptic paroxysmal events
Memberships: Ukrainian paediatric neurologists association, Ukrainian Chapter of International League Against Epilepsy, EPNS, ICNA.
Affiliation: Reader in Paediatric Neurology, Institute of Child Health, Univeristy College London & Hon. Consultant in Paediatric Neurology, Great Ormond Street Hospital, London.(Previously: Reader in Paediatric Neurology, University of Bristol)
Training: Medical Degree, University of Bristol 1990. Paediatric & Paediatric Neurology Training: Bristol, Birmingham, Toronto and Southampton. Epidemiology Training: London School of Hygiene and Tropical Medicine, MRC Epidemiology Unit, Southampton, & National Perinatal Epidemiology Unit, University of Oxford.
Clinical & Research Interests: Infantile epilepsy, tuberous sclerosis complex, childhood stroke, neuroepidemiology.
Memberships: British Paediatric Neurology Association & European Paediatric Neurology Society.
Affiliation: Kinderspital, Steinwiesstrasse 75, 8032 Zürich
Training: 1985 Graduation as a Doctor of Medicine, University of Graz
Registration as a General Physician, 1995 Board Certification in Pediatrics, 1999 EEG – Certifikate of the Austrian League against Epilepsy, 2000 Herbert Reisner Preis, Austrian League against Epilepsy, 2003 Habilitation at the Medical University Graz, 2004 Head of Child Neurology, University Childrens’ Hospital Graz 2011, Professor of Child Neurology, University of Zürich
Fields of Clinical Interest and Research: 6/1999 to 12/2001 – research fellowship: „Infantile epileptic encephalopathy: the role of pyridoxine-metabolism and guanidino-compounds and guide lines for a metabolic work-up“, Department of Paediatrics, University Hospital Vienna. 2007 Associate Professor at the Division of Biochemical Diseases at Children’s and Women’s, Vancouver, UBC – joint neurometabolic clinic.
Research focus: Infantile epileptic encephalopathies with focus on pyridoxine dependent seizures. Actual project: Metabolic and genetic research into infantile epileptic encephalopathies (in cooperation with Anita Rauch, Institute of Clinical Genetics, Zurich).
Memberships: President of the “Gesellschaft Neuropädiatrie GNP” since 2011, Elected Board Member of the EPNS (European Society for Pediatric Neurology), Board Member of the SSIEM (Society for the studies on inborn errors of metabolism), Öster. Arbeitsgruppe Neuropädiatrie, Österr. Gesellschaft für klinische Neurophysiologie, APS Arbeitsgemeinschaft Pädiatrische Stoffwechselerkrankungen, SGP Schweizer Gesellschaft für Pädiatrie, SGNP Schweizer Gesellschaft für Neuropädiatrie. Editorial activities: Editor of Neuropediatrics
Affiliation: Professor of Child Neurology, Children`s Hospital, University of Kuopio, Research Consult at the Children`s Hospital
Training: Licenciate of medicine: University of Basel, Switzerland
Specialist in pediatrics, child neurology (University of Helsinki) and health administration (University of Tampere). Professor of Child Neurology and Head in Turku, Helsinki and Kuopio.
Clinical and research interests: epilepsy (especially infantile spasms), nerve growth factors, autism, Rett syndrome, FAS, MS, stroke, Publications: 101 originals, 26 reviews /book chapters, and 100 abstractsMember of the epilepsy surgery board (University of Kuopio for 10 years. Invited visiting Professor, UBC, Vancouver 2008. Education of students and child neurologists (for 23 years), Reviewer/Editor in several scientific Journals; Lancet, Biol Psychiatry, Epilepsia, C Child Neurol, Pediatric Neurology, Neurology, Behavioural Brain Res. etc.
Memberships and activities: Finnish Scientific Society, Finnish Neuropediatric Society, chair 2000-2004. President of the Scandinavian Child Neurology Congress 2000. Board of Arvo and Lea Ylppö Foundation
Central Medical Board in Finland.
European Neuropediatric Society. National Advisor 2002-6
Scientific Board of EPNS Conference, Goethenburg 2005, of 10th International Child Neurology Conference, Montreal 2006, of International Conference, Warsaw, 2008, of ICNA, Cairo 201, of Rett Syndrome Grants
Executive Board member of International Child Neurology (ICNA) Society 2002-2014
Board member of European Pediatric Neurology Society (EPNS) 2010-2014.
Ethic Committee of international tuberous sclerosis trials from 2014 onwards
Affiliation: Professor and Senior lecturer in Paediatric Neurology and Habilitation, Astrid Lindgrens Children’s Hospital, Karolinska Hospital and Karolinska Institute.
Training: PhD, 1987, Medical school, 1988; MD, 1990, Docent in Medical cell genetics 1991, Specialist in Paediatrics. 1998, Specialist in Paediatric neurology and habilitation, 1999, Professor in Pediatric Neurology 2009.
Field of clinical and research interest: Neuromuscular disorders
Memberships etc: Chairman of Swedish research council network on muscle disorders 2000-2003.
Board member Swedish society for muscular dystrophy research, 1999-
Board member and scientific secretary Swedish paediatic neurology society 2001-2005.
Board member of Scientific committee of RBU (National Association for Disabled Children and Adolescents), 2006-
Member of Stockholm ethics review board for medical research, 2006-
Activity leader for standards of diagnosis and care, executive committee member in international network for neuromuscular disorders, TREAT-NMD, 2007-
Invited DuchenneConnect Advisor, 2008-
Member of governing board for EU-project on development of high throughput genetic diagnosis of neuromuscular disorders, NMD-CHIP, 2008-
Work package leader and member of governing board for EU-project to develop best practice guidelines for rare diseases, RARE-BESTPRACTICES, 2012-
CO-OPTED BOARD MEMBER
Affiliation: 1997-2000 Residency on Neurology, Department of Neurology, Yerevan State Medical University after M. Heratsi, Yerevan, Armenia, 1991-1997 Pediatric Faculty, YSMU, Yerevan, Armenia, 1981-1991 42 secondary school 5/2, Mashtotz sq., Yerevan, Armenia, 2007- Assistant professor, Chair of pediatrics, YSMU, 2004- Head of Department of Pediatric Neurology, Joint Medical Center ‘Arabkir”, 2004- Vice-president, Armenian League Against Epilepsy, 2000- 2007 Senior researcher, Chair of Neurology, YSMU, Armenia
Training: 19-23, November 2003 5th Train of trainers’ course in epileptology, Pruhonice, Prague, Czech Republic, 20 October, 2005 – 20 February, 2006 Department of neurology,
University Children’s Hospital, Zurich, Switzerland, September, 2010 – October 2010 Department of neurology,University Children’s Hospital, Zurich, Switzerland.
Memberships: 2008- member of European Pediatric Neurology Society, 2003-member of European Association of Young Neurologists and Trainees, 2003-member of European Federation of Neurological Societies, 2001-certified trainer of European Epilepsy Academy, 1998-member of International League Against Epilepsy
Field of clinical and research interest: Ketogenic diet, metabolic disorders etc.
Affiliation: Head of Division and Professor in Paediatric Neurology, Division of Paediatric Neurology, Rehabilitation, Development and Co-director Neurocenter at the Inselspital, University of Bern, Switzerland,
Training: General Surgery in Walenstadt (B. Simeon), Internal Medicine in Schaffhausen (J. Uehlinger), Paediatrics in Chur (D. Vischer) and Zuerich (A. Fanconi), Switzerland; Paediatric Neurology in Zuerich (E. Boltshauser) and Bern (Ch. Hess, Adult Neurology) Switzerland and Toronto (B. Logan) Canada.
Fields of clinical and research interest: Cerebrovascular disorders especially imaging aspects, cognitive outcome and reorganisation. Ataxia especially congenital and early onset. Developmental and cognitive problems in neurological disorders. Neuroophthalmology. Teaching and mentoring of trainees in Paediatric Neurology and Paediatrics.
Memberships: Swiss Society of Paediatric Neurology (president 2004-2010) and Swiss Society of Neurology, Swiss Society of Paediatric Rehabilitation, Swiss Society of Paediatrics, Swiss League against Epilepsy, German Speaking Society of Paediatric Neurology (president 2003-2007), European Paediatric Neurological Society, International Child Neurology Association.
Michael Albertus Adrianus Petrus Willemsen
Affiliation: Radboud University Nijmegen Medical Center, Department of Pediatric Neurology, 6500 HB Nijmegen, The Netherlands
Training: 1986 – 1990: Medicine, Catholic University Nijmegen, Nijmegen, 1990 – 1993: General training, Radboud University Nijmegen Medical Cent, Febr 93 – Dec 1999: Pediatrics, pediatric neurology and neurology, Radboud University Nijmegen Medical Center, Nijmegen, Physicians exam: Febr 1993, Registration as pediatrician: Jan 2000, Registration as pediatric neurologist: Jan 2000, Thesis: Sjögren-Larsson Syndrome, new insights. Nijmegen, 19-Dec-2001. Cum Laude.
Actual position: Professor of pediatric neurology, and head of the Department of Pediatric Neurology (see above).
Field of clinical and research interest: movement disorders, neurometabolic and degenerative disorders, with a special focus on Sjögren-Larsson syndrome, Ataxia Telangiectasia, GLUT1-deficiency syndrome, and neurotransmitter biosynthesis defects.
Memberships: the board of the Dutch Society of Pediatric Neurology and the EPNS, and member of many other (inter)national societies on pediatrics, neurology and inborn errors of metabolism.
CO-OPTED BOARD MEMBER
Affiliation: Neurodevelopmental Center “A. Fokas”, 1st Department of Pediatrics, Aristotle University of Thessaloniki, “Hippokratio” General Hospital, Greece
Training: Pediatrics: Kinderzentrum Munich, Institute for Social Pediatrics and Adolescent Medicine, LMU University of Munich & Kinderpoliklinik, LMU University of Munich, Germany, Clinical Electroencephalography and Epileptology: Kinderklinik, Technical University of Munich, EMG/Neuromuscular Disorders: Friedrich-Baur-Institut, Poliklinik, LMU University of Munich, Neurology: Department of Neurology, 424th Military Hospital, Greece, Pediatric Neurology: Departments of Neurology and Neurophysiology, Great Ormond Street Hospital for Sick Children and Institute for Child Health,; Center for Brain & Behavior, Maimonides Medical Center, Mount Sinai University, NY
Clinical and research interests: neurometabolic disorders, neonatal neurology & cerebral palsy, clinical neurophysiology (electroencephalography, evoked potentials, electromyography), pediatric epileptology, neuromuscular disorders, pediatric stroke, autism; >120 publications in peer-reviewed journals (Medline), in the field of Pediatric Neurology (especially Neurogenetics and Neurometabolic Diseases)
Memberships: International Child Neurology Association, American Child Neurology Society, American Epilepsy Society, American EEG Society, American Academy of Clinical Neurophysiology, American Academy of Developmental Medicine and Child Neurology, EPNS, British Pediatric Neurology Society, German Child Neurology Society, German Society for Clinical Neurophysiology, Japanese Child Neurology Society, World Muscle Society, European Society of Pediatric Research, SSIEM, founding Member of “Brains for Brain: European Task force on Brain and Neurodegenerative Lysosomal Storage Diseases”. 2001-2005: secretary of the Greek Child Neurology Society, 2009-2011: Board Member of the Greek Child Neurology Society, 2003-2007: official Greek representative at the CNA (EPNS), 2009-2013: founding Member and elected Vice President of the Greek Society for the Study of Inborn Errors of Metabolism.
CHAIR OF THE MARKETING, PR & WEBSITE COMMITTEE
Affiliation: Paediatric Neurologist, Fraser of Allander Neurosciences Uni, Royal Hospital for Sick Children, Yorkhill, Glasgow
I graduated from the University of Edinburgh Medical School and did my paediatric and neurology training in Edinburgh, Sydney and Glasgow. I work as a full time National Health Service Consultant in a busy specialist and general hospital and am Honorary Clinical Associate Professor in the University of Glasgow. My clinical and research interests are in epilepsy, neurogenetics, channelopathies and sleep disorders. My career has been inspired and shaped by the great teachers I have had the pleasure to work with. It is vital we do not lose the ability to inspire and mentor the European child neurologists of the future. I will support the EPNS to promote educational initiatives locally rather than always at the major meetings. As a board member for the last 4 years I have assisted in organising the congresses in Cavtat and Brussels and have taught on the training courses in Sarajevo. I have served on the Scientific & Finance Committees. The EPNS must continue to support collaborative research projects as well as helping those with fewer resources participate in projects. As Associate Editor of the European Journal of Paediatric Neurology I understand the challenges facing researchers throughout Europe. I have an interest in service delivery and organisation. As first Lead Clinician of the Scottish Paediatric Epilepsy Managed Clinical Network I gained government funding to develop care through health professionals working in partnership with education, social work and the voluntary sector.